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Epilepsy

Meet Lauren: A Neuroscience Nurse Who Also Has Convulsive Syncope and Epilepsy

Meet Lauren: A Neuroscience Nurse Who Also Has Convulsive Syncope and Epilepsy

In 2016, I found myself dealing with some weird nerve symptoms that would not let up. I tried to explain it to my loved ones, but I couldn’t find the words. It was so odd to me since I am always...

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Corona Fire Utilizes MyID to Save Lives

CORONA, CA– Corona Fire Department’s partnership with the MyID Medical Profile Program had its first success story by providing our first responders medical information instantaneously for a seizin...

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Personal Stories: Freya - Sunshine and Miracle

Freya Booker born 21st of May 2011, and is our little Sunshine and Miracle. Freya was born premature (8.2 weeks) and had surgery on the brain the day after. She has an undiagnosed brain disease wi...

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Personal Stories: Martin

What it's like living with epilepsy is very hard. At first I didn't understand what my fiancé was going through. When my son was 1 month old, we were sitting on the bed. She had Rauji our 1 month ...

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Personal Stories: Jennifer

My name is Jennifer Lindley. When I was 10 moths old I got meningitis. It was by luck that the doctor that I had knew what he was looking at, because he had lost someone else to it. As I was livin...

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Superman Anthony

On Saturday, August 29th 2015, Anthony "Superman AJ" , suffered a seizure while bathing, he was rescued by his little brother and given CPR by mom until the arrival of City of Sunrise Fire Resc...

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Personal Stories: Camille

I was diagnosed with idiopathic generalized epilepsy in May 2013. I was never involved in the community until I wrote a personal essay for Cosmopolitan magazine about what it's like to be a twentys...

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Personal Stories: Genny

Personal Stories: Genny

Our daughter Genevieve (Genny) Barbour has intractable epilepsy and autism spectrum disorder. Her condition began with infantile spasms, which presented at 3 months of age. She is now 16 years ol...

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Personal Stories: Sandi

I was diagnosed with Epilepsy 15 years ago. During that time I have had over 5,000 seizures and I am taking 5 types of seizure drugs. I went through a difficult time dealing with the depression o...

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Personal Stories: Felecia

At 17 years old I have been diagnosed with epilepsy. I feel like it would be a great opportunity to let people hear about my condition, and to really express myself to the community. People with e...

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